A chemothon

Thank you for the lovely messages everyone! I really appreciate it and feel warmly embraced and cared for.  I’m resting up. I’ve been wanting to tell you all about it, but I haven’t been quite energetic enough to do it. So far so good.

Friday was quite a marathon – a chemothon – staying all day in the ward while they slowly increased the strength of carboplatin from dilution by 1000, then 100, 10 and then finally full strength. This was successful in overcoming my body’s anaphylactic shock reaction to the toxin.
After that, I was equally scrutinised while I received my first ever dose of Caelyx, which also has a bad reputation for a nasty allergic reaction – but it all went well.

Playing Rummykub

Kerrie, John, Janet and Evan stayed with me around the clock and distracted and sustained me, also with important calls from Helen and Mum for encouragement. It was good. I didn’t realise how nervous I must have been until the huge flood of relief when it was over and successful.

The day started with pet therapy (I love the Mater for the extras)! We met Gracie, the Golden Retriever, for a snuggle and a paw shake.

My scan results from Monday showed hardly any new tumour growth despite the escalating pain recently. I’m glad it’s not running rampant of course, but if not for the pain perhaps I could have postponed chemo again.

Cheers! Caelyx …

My veins coped ok with cannulation and now there’s 4 weeks to recover, so I won’t need a port after all. (I’ve never had a port before, but the frequent IV over the years has caused my veins some wear and tear.)

My senior nurse came to check if it’s ok that she has changed my future chemo sessions to Mondays to give me access to music therapy. Yes yes! I’m thrilled that they understand this is a priority for me.

She announced a “beautiful new anti nausea” medicine that has come available since my previous treatment. In one dose it contains a long-acting ingredient to help me feel comfortable for 4 days. This is in addition to the usual handfuls of pills they give. It’s mind boggling!

After chemo, John and Evan took me to walk along the riverside and I even climbed the steps to the top of Kangaroo Point cliffs – all in one go! With the help of my family I’ve managed daily to also climb the steps (x 3 times) behind our local library, with rests, to keep up my exercise. I feel better from the achievement as well as benefiting from movement and heart pumping etc.

I’ve been ok at home, a little groggy and queasy at times, but pretty good really. I might experience a crash when the steroids and strong anti-nausea drugs wear off from tomorrow, but then I’m anticipating steady improvement. Best of all, the cancer might start shrinking straight away – oh joy!

8 thoughts on “A chemothon”

  1. So glad things have started so well. I hope your next post will mention less pain and that will really make the treatment worthwhile. Great to hear you’ll have music therapy on your Monday sessions. Aren’t we lucky to have such a great medical system?
    Love
    Danni

  2. “Team Bird” how great everyone was with you! So glad it seemed to go ok so far.
    Another friend of mine had chemo recently and she had what must be the same anti nausea medicine and it worked well for her. Take it easy and get as much rest as you can. Xxx

  3. Well done you. Great family to keep you supported and some nice things to look forward to, including reducing the size of that aberrant tissue. Sending some fine in-tune chords (they always give me a thrill) and hugs.

  4. Amazingly strong! So happy to hear it wasn’t as bad as you thought.
    There’s no ‘might shrink’ , believe & visualise it will! I’m with you!
    Can’t believe I’ve had a late Sunday night – Jay Hoad played in Atherton at the ORB – he is into sound therapy & I just might get down to Cairns Tuesday for a sound mediation event he has on. All new for me.
    Take care, keep up those stairs. Hugs Gina

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