Rucaparib is designed for me

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Here’s a quick update – sorry late, but you know the rule: no-news-is-good-news! Yes, my last tests showed the cancer is still stable (on average the tumours are no bigger) and my blood counts also are nearly normal. At least they’re good enough to stop worrying and say at last I’m on an appropriate dose of medication to suit my body.

Funny how the bar is lowered for celebrating a great result! I do still have numerous tumours in my abdomen, especially one I can feel, so for comfort I still avoid tight clothes, but I have learned to be very glad if the lumps are not growing.

No one can say how long the treatment will work for me because it is so experimental. I now hold the record at my hospital for success with this drug at 9 months and still counting. The other patients dropped out of the trial at 7 months or sooner. The medication didn’t serve them so well, probably because they have different genetics. Actually it looks like rucaparib is a designer drug for me! I am deeply grateful for this opportunity and I wish for speedy research to find helpful treatments for my ovca friends and peers!

Meanwhile, I only have to report to the doctor once a month so John and I are off to Perth for a holiday, feeling very fortunate!

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34 thoughts on “Rucaparib is designed for me”

  1. I love to read your reports, to see how well your doing. But sorry I don't reply often enough. Well what ever your doing, your doing it well, and thank God it's working. To top it off, we see that your making the most of the beautiful life we got, and that's the way we like it. Love John Thelma MerylJoy, JonnaMae Jacinta PS Got another new Knee ./. Now to catch Jacinta.

  2. Just so nice. We are sitting here purring for you. You'll be in Perth now. Rug up! Love the photo of you, limbo lady.

  3. Hi Ali, delighted to hear of your ongoing respite – goes without saying we think of you over here lots. My friend in the same predicament as you is just about stable with the Avastin but it is effecting her blood pressure so it is a very fine line. My sister in law who recently underwent surgery for bowel cancer has just heard that the path lab has confirmed she has no 'escaped ' cells so does not now need any further treatment we are all delighted! I hope all is well with you, Abigail our youngest has just announced grandchild no 10 is on the way – we will have to start saving again! Take care and love to all the family Jane ps is Margaret still with us? pps I was offered an operation for a new hip (much needed) last month but told the waiting list is 17 months, yes months!, so we are spending lots of pennies in the Autumn to get it done so that I can recover before the spring.

  4. Fantastic news Ali, Im so pleased u r having success on this trial..enjoy your holiday 😊 xx

  5. Great news Alison. Did the drug make the others ill or did it just not have any affect for them? Just curious. So glad it suites you though. Have a lovely break, you've earned it. X

  6. fantastic news, Alison. A great time and season to travel. Have a great, and well-deserved holiday!

  7. fantastic news, Alison. A great time and season to travel. Have a great, and well-deserved holiday!

  8. Great news Alison. Did the drug make the others ill or did it just not have any affect for them? Just curious. So glad it suites you though. Have a lovely break, you've earned it. X

  9. Fantastic news Ali, Im so pleased u r having success on this trial..enjoy your holiday 😊 xx

  10. Hi Ali, delighted to hear of your ongoing respite – goes without saying we think of you over here lots. My friend in the same predicament as you is just about stable with the Avastin but it is effecting her blood pressure so it is a very fine line. My sister in law who recently underwent surgery for bowel cancer has just heard that the path lab has confirmed she has no 'escaped ' cells so does not now need any further treatment we are all delighted! I hope all is well with you, Abigail our youngest has just announced grandchild no 10 is on the way – we will have to start saving again! Take care and love to all the family Jane ps is Margaret still with us? pps I was offered an operation for a new hip (much needed) last month but told the waiting list is 17 months, yes months!, so we are spending lots of pennies in the Autumn to get it done so that I can recover before the spring.

  11. Just so nice. We are sitting here purring for you. You'll be in Perth now. Rug up! Love the photo of you, limbo lady.

  12. I love to read your reports, to see how well your doing. But sorry I don't reply often enough. Well what ever your doing, your doing it well, and thank God it's working. To top it off, we see that your making the most of the beautiful life we got, and that's the way we like it. Love John Thelma MerylJoy, JonnaMae Jacinta PS Got another new Knee ./. Now to catch Jacinta.

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