I’ve been taking the experimental rucaparib pills for 11 weeks now, ecstatic that the treatment is effective in my case! However, from the start I felt reduced energy, especially finding it a struggle going uphill. The first few blood tests didn’t show any problems but I’ve felt worse in the last two weeks. I had a wonderful time at the Woodford Folk Festival but I couldn’t dance as much as I like and walking up hills was very challenging. This week even climbing the stairs at home left me feeling weak and ill, so I asked for another blood test. Sure enough, now I’m depleted in most blood counts, especially haemoglobin.
Therefore I’m having a blood transfusion as I speak. This a first for me – THANK YOU to all you beautiful blood donors out there!!!! I am incredibly grateful and salute your great generosity and noble spirits!
It seems the top dose of rucaparib is too strong for my metabolism. Once I recover my bone marrow function I will start on a slightly lower dose.
Oh well … It’s strange to be here in hospital in my fabulous pyjamas again. (Yes they’re 6 years’ old. I never wear them – just keep them for rare occasions like this.)