I qualified for the Rucaparib trial – hooray! Actually this clinical trial includes all genetic types (contrary to what I wrote last time) and will follow our success or otherwise, so in future a genetic test will be available to determine who is best for this treatment.
I started taking the tablets last night and so far so good. I'm told I may experience nausea, fatigue and other side effects, but I'm thinking, surely it won't be as bad as chemo!
Just to recap, this is a new drug which kills only cancer cells and it acts by interfering with the DNA repair process. There is a big variety of mutations involved in ovarian cancer. Slowly the research is uncovering some of them and finding drugs for treating the different types. There's about a 25% chance that my tumour genetics are a match for this treatment. If rucaparib works for me it will slow or stop the tumour growth or even shrink them. If it doesn't work, I'll drop out of the trial and go for more chemo instead.
I've been getting to know the medical team at my new hospital, RBWH, and learning to find my way around. I changed campus for now because my doctor at the Mater found this suitable trial at the other hospital and arranged for me to be in it.
Meanwhile sometimes I feel like I am living a double life. As you know, I'm very enthusiastic about LETS so I have been finding opportunities to talk about community exchange systems and giving lectures on the topic around the city. Then there are days when I put on my other hat and pose as a sicko at the hospital, waiting for hours for appointments, scans, blood tests and so on. I feel very fortunate that my life is so full and meaningful!